Stigma Fighters: Joy H.

Truths and Stigmas

Today I’m straying from my normal happy, silly self I present on Evil Joy Speaks. I’m honored to be writing a post as part of Stigma Fighters. I know many of you know my story, some or all of it. Many may not. If this message can help just one person, it’s worth my sharing such an intimate part of me.

I worry constantly. It can be debilitating at times. It causes me to be physically ill other times. And many times it takes the joy from my life.

I don’t want to be this way. I take medication. I see a therapist WEEKLY.

I work hard.

I frequently avoid questions about where I am on Tuesdays. “I have an appointment.” With my therapist. Every Tuesday. For the last two years.

Why do I feel the need to be vague, even to those closest to me?

Stigma.

There is stigma with needing mental health care.

WHY?!?! I’m diabetic. I take medication to manage my diabetes. Why should I not manage my mental health in the same open way?

Because I WORRY about the judgement. I worry people will think I’m a terrible person. Not a good mom. Not a good wife. Not a good friend.

Not a good person.

The reason I have been seeing a therapist so regularly the last two years is I was diagnosed with PTSD or Post Traumatic Stress Disorder in 2012. In November of 2011 my husband didn’t feel well and within 24 hours was in a battle for his life. He was on life support fighting kidney, heart, and lung failure. He was on 24 hour dialysis. His body was infected with a septic staph infection that forced the doctors to induce a coma. He fought for 10 long days, and won.

When you’ve been married 16 years and together for 21…and you’re only 36 years old….your partner is your life. Dealing with illness like this is never expected but certainly not in a young, healthy 37 year old. A man who has been the center of my world since I was 15. The father of our four young children. We grew up together. We met in high school by chance, at a summer camp and maintained a long distance relationship until we got engaged when I was 18. We were married when I was 20 and he was 22. My life is him, I don’t know my life without him and I never want to.

I was afraid I would lose him. That our kids would loose their father. I was afraid for his life. I was terrified.

And now…

He is fully recovered. COMPLETELY recovered with no after effects. We ran a marathon last June. The most incredible 26.2 miles of my life…because we ran it together.

Once his crisis was past, mine had just begun.

As he got better and was back to life I fell apart. Completely and totally fell apart. When in crisis mode, life works. I work well in a crisis. I’m calm and collected (for the most part) and I do what has to be done. Or am able to let go and have other do what has to be done. I tried to be strong for my kids. I tried to be there for them. I failed in so many ways I can’t even count them and for that I have immeasurable guilt. But I tried. And I think we all came through to the other side okay. We made it through the tough stuff.

And then the crisis was past. BAM.

My life stopped.

I couldn’t function. Ambulances caused me to have to pull my car over because I was crying so hard I couldn’t breathe. Sirens took my breathe away.
My husband traveling for work left me in a panic; what if he became ill? Who would know? The thoughts became paralyzing.

It got to the point where even watching a TV show would set off the panic in my body. I began recognizing things that I shouldn’t know about, but did. The purpose for a blue tube….they don’t use them for short term comas, it saddens me that I know that.
I would change the channel, leave the room, do anything to not notice or watch what was unfolding on the TV - it was too painful.

Two and a half years later and I still leave the room if something comes on TV that triggers the memory. The thoughts still linger, just waiting to be ignited. I am getting better though, with help from my therapist and medication, I am moving forward. I can drive past an ambulance and although it may give me pause I can keep going. I no longer fear him traveling for work I have learned to embrace the quietness and time with the kids.

Every day I work on it, and every day is better than the other. There are set backs but in the end I am moving forward.

If you need help, seek help. Work to break the silence and get rid of the stigma.

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Joy aka Evil Joy is a mom and wife. She lovely refers to her children as spawn and her husband as Dr. Evil. Often humorous, occasionally serious, Joy blogs about life as she sees it. And she often views life while blogging, running, snowboarding, or driving her spawn around. Come to the evil side…The Evil Joy side of life.

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  • http://thefeveredpen.wordpress.com/ jess.⚓

    That is so scary! I’m glad he’s okay now. I can’t imagine how that would feel!

    Thank you for sharing this. Xoxo

    • Evil Joy

      It was hard. He was in a coma for 10 days, hospital for 5 weeks, and off work for nearly 5 months.

      But we made it!! I’m glad you took the time to read and comment! Makes it worth the scary part of sharing…..

  • http://teri-b.tumblr.com/ Teri

    You are an amazing wife and mother and your strength is inspiring to those around you. Keep the faith, my friend. You’ve got this.

    • Evil Joy

      Teri, you’ve helped more than you know! Keeping my mind focused and being so supportive. I worried I would scare people away by being honest and you’ve been there for me through it all since we met (on line and in real life.) You rock my friend! Thanks for being my rock too!

  • StacySewsandSchools

    Thank you so much for sharing your story. I have depression and fibromyalgia. My mother had schizophrenia. I completely understand fighting against the stigma of mental health disorders.
    HUGS!!!!! You can DO THIS!!

    • Evil Joy

      Stacy - keep fighting the fight my friend. The stigma associated with non-visual illness or disorders is so hard - people just don’t understand. I am happy with the awareness people are gaining into these issues and I hope you find happiness and support!!!!! Hugs!

  • Karen @ BakingInATornado

    Your story is both terrifying and hopeful. I do exactly what you do, use all my strength in a crisis and put off reacting until it’s over. It serves a purpose in the midst of things but can be debilitating later.
    The hopeful part is, of course your bravery. You chose not to wallow in the fear but to get the help you need and meet it head on. Your children are lucky to have a Mom who sets such a great example.

    • Evil Joy

      Thanks Karen - I worry I messed up my kids in the process of dealing with all of this, but I hope in taking the proverbial bull the horns now I am showing them it’s okay to need help and more importantly, it’s right to seek help when you need it.

      Thanks for all you do Karen - you’re amazing!

  • Tamara Gerber

    What a bitter sweet post. And what a courageous blogger who posted it. A good person, a good mom, a good wife, a good friend who makes it happen every single day! Who works hard and doesn’t give up. People like you deserve the utmost respect! You’ve got mine. Thank you for sharing!

    • Evil Joy

      Oh Tamara - you brought tears to my eyes. Thank you for your words! I am hoping this reaches one person who will find hope in the words …. just one. More would be awesome, but one would be amazing. I needed to hear I needed help and it took some strong people around me to tell me…..thanks for supporting me!